Tamara Simeunovic is a creative professional and author whose work is deeply rooted in personal experience, resilience, and advocacy. Through her writing, she brings attention to the realities of living with epilepsy, an often misunderstood invisible disability, while also addressing broader issues such as mental health, discrimination, and emotional trauma.
Diagnosed as an infant, Tamara has faced decades of medical challenges, social exclusion, and misunderstanding. Rather than letting these experiences define her negatively, she has transformed them into a powerful voice for change. Her book The Epileptic Warrior Princess offers an unfiltered look into life with epilepsy, combining personal storytelling with practical insight to educate and empower readers across all walks of life.
In this interview, Tamara shares her journey, creative mission, and the values that guide her work.
What inspired you to start writing about your experiences with epilepsy?
Tamara Simeunovic:
Based on my own experience, I wanted to provide an honest and personal perspective on living with epilepsy, a condition that affects not just health, but relationships, school, work, and everyday life.
This isn’t just my story. It’s the story of millions who are misunderstood, overlooked, or mistreated because society still doesn’t truly understand what it means to live with epilepsy. I wanted to write something real, something that gives others strength and encourages people to look beyond stereotypes.
Your book The Epileptic Warrior Princess goes beyond medical discussions. What makes it different?
Tamara Simeunovic:
The book talks openly about the hidden side effects of medications, the trauma of living under constant judgment, and the struggles people face navigating disability systems.
It also looks at wider issues, discrimination in schools and workplaces, and the emotional toll on families and carers. I wanted it to be more than just information. It’s both a personal story and a guide that can help not only people with epilepsy, but also employers, teachers, friends, and the general public understand the reality.
What themes and values guide your work as a writer?
Tamara Simeunovic:
I like to write books about disabilities to help raise awareness, improve understanding, and ultimately make life better for disabled people, their families, and society as a whole.
I focus on honesty, awareness, and empathy, making sure people feel seen and understood, while also educating those who may not have experienced these challenges themselves.
Can you tell us about the projects you’re currently working on?
Tamara Simeunovic:
I am currently writing my second book on epilepsy and anxiety. I am also writing a book about dealing and recovering from narcissistic abuse in the hope it can help others who have found it difficult to get counselling help and were misjudged by society for being fearful and anxious after years of mistreatment and abuse by ex partners or those closest to them. I am hoping this book helps raise awareness of domestic and narcissistic abuse as this is more damaging due to impact on brain and mental health than physical abuse.
Outside of writing, what brings you peace and inspiration?
Tamara Simeunovic:
I love walking in the park with my seizure alert dog. Being around trees and nature gives me a sense of peace, inspiration, and calm away from the stresses of life.
I also enjoy listening to Within Temptation and Shakira, watching Disney movies, and spending time around animals, though I’m not a fan of mosquitoes, wasps, or anything that bites and spreads disease.
Through her courage and honesty, Tamara Simeunovic is helping reshape how society understands epilepsy and invisible disabilities. Her work not only gives a voice to those who often feel unheard, but also serves as a powerful reminder that even in the face of adversity, stories can spark awareness, connection, and meaningful change.
With more projects on the horizon, Tamara continues to use her creativity as a force for advocacy – one that informs, empowers, and inspires.
