Ed Sheeran and Selena Gomez join Venture virtual fundraiser in the Cures lineup

(by – Hollywood Reporter) EBRP is the world’s largest organization supporting EB research, having raised $ 40 million to fund 94 projects, per organization. Last year’s Venture Into Cures virtual event drew over 500,000 viewers and raised over $ 2 million to fund research.

“Now is a critical time when life-saving EB therapies become not an ‘if’ but a ‘when’, said Michael Hund, CEO of EBRP. “With the current momentum, adequate financial resources and our innovative model of risk-taking philanthropy, we are accelerating the provision of treatment and cure to people living with EB. In the process, we are pioneering a model to accelerate treatments and cures for the 7,000 rare diseases that affect 10% of the world’s population. “

INGLEWOOD, CA – APRIL 19: Selena Gomez attends WE Day California at The Forum on April 19, 2018 in Inglewood, California. (Photo by Jesse Grant/Getty Images for WE) NEW YORK, NY – JUNE 15: Ed Sheeran attends the Songwriters Hall Of Fame 48th Annual Induction and Awards at New York Marriott Marquis Hotel on June 15, 2017 in New York City. (Photo by Theo Wargo/Getty Images for Songwriters Hall Of Fame)

Written by Alex McCurthy

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